Back in Business!

I’m so sorry for those of you who tried to access my blog and were denied access. My settings were set to private after I had an issue with my Twitter account possibly being compromised. All is well now and I’m back online. I also needed a short break from all things related to the L word. ;-) Since I have become involved with the Lyme community and started our support group in Boston, I’ve noticed I have a tendency to get a little depressed after an event or meeting. It’s hard to hear how Lyme has affected so many people’s lives. It’s especially hard to see people from all walks of life who have been severely debilitated. So, I’ve allowed myself to take some time away – to re-group – and then dive back into all the work we are trying to do to help people like you and me get through this.

I have been doing really, really well. I’m taking hot yoga classes 2-3 times a week, a few bootcamp-like cardio classes and I’m running again. I’m training for my favorite race in Boston – the Marine Corps Honor Run in Boston on May 10th. I’m running with Rylan this year. It’s such an amazing event – honoring the men and women that serve our country. They usually have many of the marines run in formation while chanting cadences and there are always a few service-men who were wounded at war who race as well. That is truly inspiring to watch. This year, they are honoring Captain Jennifer Harris – a helicopter pilot from Swampsott, MA who was killed in action in Iraq. If you’re up for a nice run along the beach with a few soldiers, come join us! Marine Corps Honor Run 2014

I hope that you all are enjoying this beautiful day today and staying strong and MOSTLY healthy!

xo,
Brandi

Blood Orange Tofu and Veggie Smoothie

FINALLY!  I feel like a normal human being this week.  No more symptoms and I’ve been able to do some yoga and running.  I’m so happy to put all of THAT behind me for now!  To celebrate, I took out my Vitamix that has been collecting dust since Christmas and made a healthy fruit and veggie smoothie.  I know that some people with Lyme try to stay away from oranges and other fruits that have a high sugar content…but I’ve decided to reintroduce them to my diet after years of not eating them.

WHAT YOU NEED:

3/4 cup of soft tofu
1/2 blood orange – peeled
1 banana
1/2 an avocado
1/2 cup strawberries
1/4 cup of blueberries
One handful of pea shoots (optional)
One handful of baby spinach
2-3 Kale leaves
1/2 cup of coconut milk

Place all ingredients into your Vitamix or blender and blend until smooth.

I found these in the produce section at Whole Foods.

I found these in the produce section at Whole Foods.

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Smoothie

 

Here’s to a week of feeling strong and healthy again!

Strength

Finding the strength and courage to get through the day in the midst of a MAJOR flare-up can be so hard.  The symptoms I still experience from Lyme can be so intense and scary.  It often feels as though my body is slowly shutting down.  This week has been especially hard on me as I was symptom – free for a few weeks and suddenly crashed on Monday.  There is really no explanation as to why it happened – I’ve been on the same medications for awhile now.  Regardless, it made me think of what I needed to do to prepare my boys if anything were to happen to me.  I also thought about what my life was like before and I wondered what it would feel like to be free of these lingering and often debilitating symptoms.  Free of the migraine-like headaches, the constant buzzing and vibrations in my head, the heart palpitations that make me so weak and light-headed, the stiffness and muscle spasms in my neck that make it impossible for me to fall asleep and the feeling of wanting to jump right out of my skin – the anxiety is so intense and is like nothing I have ever experienced before.  I wish there was another word for the anxiety caused by Lyme as it is so different than the anxiety one might feel when scared or nervous.  It’s INTENSE and feels toxic.  And during these episodes, I still push myself to run all of the daily errands and make sure I’m present for appointments and dinners I’ve committed myself to and I dress up and put on some make-up and look fine.  So, everyone assumes that I’m fine – because how would I be able to do all of these things if I was so sick.  But I’m struggling and fighting so hard to hold it all together and no one sees me at the end of the night sitting up-right in my bed in a panic.  My body so stiff and weak, my hand clutching the back of my neck, holding it tightly to try to control the muscle spasms.  The awful creepy-crawly sensations through my body.  And now the pain.  No one sees the tears or hears me frantically praying for God to make it all go away.

But somehow, somewhere, I am able to find the strength to make it through the night.  I fall asleep and wake up to a new day.  And on a good day, I am able to leave everything that happened the night, days or weeks before – behind me.

strength

In Fear of Fun

cosmomom1:

Thank you, Lyme Whisperer for putting so perfectly into words what it’s like to live with Lyme disease.

Originally posted on lymewhisperer:

In fear of fun I live
For Borrelia will pounce
When I’ve exhausted my energy
Every last ounce.
Dizzy and light-headed
Weak in the knees
Numb and scared
Unable to breathe.

Somehow “everyday” life
I can for the most part manage
Exercise, commuting, cleaning
A full-time job, cooking and practices.
Homework and laundry
Groceries and games
More, more, more
And more of the same.

BUT throw in anything on top
Anything at all
The balance is tipped
Damn it all.
Like packing for vacation
Let alone the trip
For the added endurance it takes
I am not well equipped.

Remember DisneyWorld?
And the stroke-like attack?
Borrelia at her finest
Though I fought back.
I’m in fear of fun now
For what it brings
Fatigue, overstimulation
And a body on the brink.

Business trips, business trips
Long hours and days
Jet lag and marathon meetings
Make for Lyme haze.
Drinks and…

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Pizza Party!

I promised the boys a pizza making party after school with just the three of us.  When the going gets tough…make pizza!  We did this after my trip to the ER.  I can always count on some laughs and giggles with these guys.

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And, take notice of our little Superman.  ;-)

Clean Eating and the Paleo Diet

I have been telling myself for several months now that there is NO way I could possibly go on the Paleo diet, even if it means it will help me feel better.  I am STARVING now just thinking about the idea.  I know a few people now that swear by it and believe that it has helped them recover from an various illnesses.  I have spent many days reading through Paleo recipes and unsuccessfully tried to put together a list of meals and a grocery list that would get me through just one week.  I have failed MISERABLY many, many times.  So, Sunday evening, I finally decided to try again.  I gave myself a goal…at least ONE Paleo meal a week.  I’m going to EASE my way into this diet and will eventually (hopefully) become a full-blown “Paleo-ist”…or whatever you might call someone who eats lots of spaghetti squash and sweet potatoes.  If any of you know of any good sites to help me out, feel free to comment below or send an email.  I need help!!

I am so proud to present you with my very first Paleo dish that I found on Pinterest.  Speaking of Pinterest…it’s addictive.  Seriously guys.  I have over 1,000 pins and I think I’ve actually used 4 of them.  I can’t stop PINNING.

This recipe was from the Paleo Pot and was so easy to make.  That’s why they call it the “Stupid, Easy, Paleo Spaghetti Squash and Meatballs”.  My kids even liked it!

Spaghetti

It didn’t photograph well, but it was SO good.  I think next time I’ll make my own spaghetti sauce instead of using the canned sauce.

I also made a healthy, spinach salad with strawberries, avocados, almonds and gorgonzola cheese (cheese is not allowed on the Paleo diet-see I’ve already cheated) served with a poppy seed vinaigrette.  This recipe came from Gimme Some Oven and I found a list of “Paleo Friendly” foods on the Ultimate Paleo Guide blog.

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The salad was amazing!

This was lunch I pulled together for myself and my very sweet friend, Amanda.  Take out the cheese, sushi, crackers and french baguette and you’ll find yourself another Paleo meal.  See why I’m starving??

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Amanda

But a gluten free mousse cake is ok, right?

If you are on the Paleo diet and have any advice or resources that might help, PLEASE send them along.  I would love to hear from you!

xo,

Brandi

MA Lyme Association – Meeting Saturday, March 1st

Originally posted on Cosmo Mom with a Twist of Lyme:

DATE: Saturday,  February 1st : 1:00pm - 3:00pm. Future meetings will take place the first Saturday of every month at the same time and location.
LOCATION: Cambridge Spaulding Rehabilitation Center - 1575 Cambridge St., Cambridge, MA - Chapel Conference Room (Once inside the main doors, simply ask security for further directions to “Neuromuscular Infections Treatment & Rehab Interest Group,”)
PARKING: Please note that since visitor parking is limited at the center, the alternative would be metered parking on Cambridge Street, so please have a few extra quarters in tow just in case.
PUBLIC TRANSPORTATION: The Rehabilitation Center is a 10 minute walk from the Harvard Square Red Line T station.
Upcoming events
Saturday, March 1st: Richard Longland will 1) present a chapter of his interview with Dr. Alan MacDonald titled “Why Am I Still Sick?” followed by a Q&A session,  2) provide a 50 minute slide  presentation on biofilms, and, time permitting, 3) show a clip from Dr. Eva…

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