About me

Hi!  I’m Brandi – wife to my wonderful husband Chris and mother to two active little  boys Rylan and Finn.  We are enjoying the  city life as we live right in the heart of Boston.  I decided to write this blog after I tested  positive for Lyme Disease on July 8th, 2011.  I will talk about my struggles with this disease and will share some  of my recipes that I have accumulated after my doctor suggested I go on a gluten, dairy and yeast free diet to help me recover from  this.  I also wanted to focus on some positive things that are happening all around me.  Although I’ve been sick and continue to recover, I have been blessed with a loving and supportive family and generous and kind friends.  I hope you enjoy reading my blog.

Click here for my Lyme Story 

20 thoughts on “About me

  1. Well…if this is picture of you and your wonderful husband, Chris, you look like you’re weathering Lyme pretty OK, but I’m very concerned about Chris…

  2. I just love reading your blogs so far and your recipes look so good, I cannot wait to make them. My name is Amber, I am 30, married, live in Virginia and was diagnosed with Lyme last week. You and I are very similar in the fact that, I saw several doctors for supposed “Panic Attacks” and “anxiety” that appeared out of nowhere back in May. I was told the SAME THING about being it was the stress from raising 2 kids. I have a 4 year old son and an autistic daughter who is 3. One doc even told me I should see a shrink. I am a very positive person who never takes things too seriously and I always look on the bright side of things even when it’s hard. How could I be having panic attacks or anxiety is what I thought! It now all makes perfect sense, seeing as I have Lymes. I was very fortunate though to have found the LL doc only after the 3 PCP’s couldn’t help me. It was through my daughters Autism that I found a “holistic, naturopathic” doc a year ago, not for me but for my daughter! I guess it just shows that things really do happen for a reason. (So cliche, I know) :) Anyhow, I just started taking Doxy this past Sunday, so I am hoping I won’t Herx too bad. I am still not sure how long or even HOW I got this terrible disease ( I don’t even remember the last time I was bit by a tick) but should know something in a few weeks. I am so glad to have found someone with similarities to me, (Kids, loves to cook, recently diagnosed, etc) Thanks for writing this blog!

  3. Thank you, Amber! I’m so happy you are enjoying my blog! It sounds like we have a lot in common! I sure hope you start feeling better soon, especially since you have two little ones to take care of. Naturopathic doctors are great. I’m seeing an Integrative Physician and she is really focused on building up my immune system while also killing the Lyme. Please let me know if you should have any questions while you try to get better! Brandi :-)

  4. I definitely will! It’s so nice to know I have someone with Lymes too to kind of emotionally help me, and same goes for you! If you ever just need to talk or vent or whatever, I am here for you! (My doc is integrative as well!) Going to National Integrative Health Associates in Washington, DC….My doc also thought before my lab work came back that I had thyroiditis too…the similarities of us are just crazy! in a good way! Take care! :)

    -Amber

  5. No, I didn’t. Achy joints, neck, shoulder and hip pain which I no longer have. If it persists, I would ask your doctor. It took atleast 4 weeks of antibiotics before I started feeling a little better. It was when they added Cefdnir that I noticed a huge difference. I’m allergic to doxy. :-)

  6. Hi! You are so sweet, thanks for checking up on me….Feeling MUCH better. The only 2 strange things that have happened to me so far since starting the doxy was I had a fever for about 2 hours one day, and then all of a sudden it just dissapeared, and the other day I woke up with terrible groin pain that lasted all day, but when I woke up the following day it was gone! Other than that, feeling pretty good. My doctor said if I am not feeling anything in the next few days I can go from taking 300 mg a day to 400 of doxy. How are you feeling Brandi? Ready to go trick or treating tonight? What is your temperature expected to be up in Boston tonight?

    • Oh good! I’m happy you are feeling better. My vertigo came back this weekend and I’ve had weakness/numbness in my legs. I hope this passes soon! I’m looking forward to trick or treating tonight with the boys. It’s going to be cold though! I hope you have a great Halloween with the kids! B

  7. hi Brandi,

    I have been touched by your story and I believe that only WE, the patients suffering with Lyme disease can understand the struggles we’re going through.

    I really wish you’re going well on your way to recovery, just as much as I wish that for myself and everyone else that has been touched by Lyme.

    I have also started my own website to bring more awareness on Lyme as well as raising funds for my highly expensive laboratory tests and treatments.

    Please visit my site if you’ve got the time – http://www.lyme.ws/
    You can find my story right here – http://www.lyme.ws/lyme-disease-story-2/

    God Bless
    Alexandru

    • Alexandru,

      Was your story featured on Tired of Lyme a few months ago? I think I remember reading your story. My heart goes out to you as you struggle with this, especially in a country that does not recognize that Lyme exists there. You mentioned that you were going to get tested for Lyme at a hospital in Romania. Have you been tested yet? I pray that you get the treatment that you need so that you can get well!

      Best wishes to you!
      Brandi

      • hi CosmoMom,

        It’s been a while – I’ve been struggling with a dozen of debilitating symptoms in the past 3 months, now it seems that I might be reaching remission. I have done the tests and it seems that I am positive for Lyme disease and Bartonella.

        I’m on a 100% natural protocol now, I don’t really afford the antibiotics, they are not covered by any insurance in Romania and they cost between ($1000 – $10.000) a month depending on the antibiotic.

        I’ll try to save up some money, even if it seems impossible to save up such amounts of money, and get a couple of courses of antibiotics.

        I hope you’re doing well and you’re achieving remission.

        Sincerely,
        Alexandru Matei
        Project Manajer

        http://www.lyme.ws

        http://www.facebook.com/BoalaLyme

      • Hi Alexandru!

        I have been wanting to go all natural but am afraid to start…just in case it doesn’t work for me. I’m happy to hear that you may be close to reaching remission. I send my best. I hope I am on that path as well! I’ve been feeling well but will be changing and adding new antibiotics this weekend so I’m a little nervous. I’m much better than I have been so I know that I’m am getting better.

        Best wishes to you while you recover from this. Please keep me posted!

        Brandi

  8. Hello, I just found your blog. I am a mother of 2 children-18 month old girl and 7 yr. old boy. I became sick at the end of my pregnancy (although I now realize I’ve had mild symptoms for many years) and VERY ill after delivery. I too was told that it was anxiety and also PPD. I found out 5 months ago that I have Lyme Disease and I’m being treated by a wonderful LLMD. I was wondering, how long was it before you started noticing improvement? I’ve seen a tiny bit of improvement, but it’s very slow and the flares are often and long so it makes me feel as if I’m not improving. I think this is going to be a very long, slow road, as it is for many Lyme patients.

    • Hi! Your story sounds so familiar! I noticed a big change after 6-7 months and that was when I switched my antibiotics from Biaxin to Doxy and then I went on IV for 30 days and that made a huge difference. I then went on Ceftin and a few other meds and I felt well on them until August when I was put back on Biaxin. I got really sick again so my LLMD put me back on doxy with other meds and I felt better again. It’s a roller coaster ride but eventually you start to feel better and better and the lows aren’t that bad. Hang in there! I know how hard it is to take care of a newborn while you’re sick!!

      I hope you start feeling better soon!

  9. As many people have already commented, our lives are very similar. Although, from what I can tell, I’ve been at this crusade for the cure a little longer. I was diagnosed in Sept 2009 after 6 years of progressively worsening symptoms. I was a college athlete, had just finished graduate school and was officiating high school basketball. I had always lived in Georgia, but married and moved to Seattle where my then fiance was working. I’m sure we could talk for hours about similarities, we are the same age and have children around the same as well. I was bit in 2003 and again in 2008 (both times in Missouri) when I was 6 weeks pregnant with my second. Since FINALLY being correctly diagnosed in 2009, I have learned alot. Detox, juicing, gluten free, low/no sugar…most of which I already did. I was struggling to stay on the local tennis team and trying everything. I also don’t look sick. I look great…fit, long flowing hair, younger than my years even. I won’t take you through my trials of antibiotics, but after 18 months of it I broke. I had a mini stroke in August 2010. From that day, I had to change the way I was viewing this illness. I read a book called “You’re not sick, you’re thirsty” and while some of it seemed wacky, the gist of it was chronic dehydration looks like abc and makes you susceptible to xyz. I started the Cowden protocol for the next 2 years, moved to Byron White Formulas, found a chiropractor who was a gamechanger, turned our Seattle yard into a massive organic garden, subscribed to the Townsend Newsletter, and uncovered the secrets of the sun. And yes, there are secrets. We also had our girls and my husband tested right after I was diagnosed. None of them had been bit. But, because of their positive bands, it became a lifestyle change…as I’m sure you know. Whatever works for me is implemented for all. My kids and husband are healthy and my improvement is dramatic when compared to the wheelchair I had been test driving. Did you ever watch the PBS documentary on the Iceman? Look him up. 5500 years old and 3% of his DNA is lyme disease. After that, I don’t view “a cure” in the conventional sense anymore. It will be a lifelong fight…but just like any video game, I’ve got my bag of tricks and have found ways to outsmart this SOB. And, every day I remind myself it could always be worse. Is it fair? Hell no. But nothing really is…I had an acquaintance recently leave 2 young children behind as ovarian cancer took her. I would rather be me than her. I’m impressed by your bravery…becoming the face to a story that needs to be told. I’ve read thousands of lyme stories, but you are the first I’ve reached out to..living a life parallel to mine on the other side of the US. We even moved to a new house at the exact same time. Thank you for giving me the awareness that somewhere, every day, someone knows exactly what I’m feeling…that level of understanding from another is nearly impossible to come by.

    • Julie! Love your story and how you have been able to manage this disease. It’s too bad you live so far away! We’d have lots to share, I’m sure! I have just started Byron White’s Protocol and am planning on a more strict diet after we move! I know how important it is. I’m Gluten, Sugar, and Alcohol free now. Thank you so much for reaching out to me. i look forward to hearing more from you and how you are feeling! Best wishes~B

  10. Brandi, my daughter is suffering with Lyme, bartonella and babesia. She has been on abx for 5 mos. Was doing pretty good then major setback 3 weeks ago. Neurologically and upper right quadrant pain. Can hardly eat, brain fog, slow to process words. My husband and I considering taking her to Hansa center in Witchita Kansas. Friends recommended the center. Do you or anyone else have any insight into this? We feel desperate. Her llmd couldn’t even explain what has happened and suggested dr. Jemsek in d.c…my fear is she is too immune compromised/ weak to handle more antibiotics.

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