The Boston Lyme Support Group will be meeting the first Saturday of every month, except for July. Please email me at email@example.com if you would like to be added to our email list. Here are the details:
DATES: First Saturday of every month
TIME: 1:00pm – 3:00pm (First hour with speaker, second hour for support)
LOCATION: Cambridge Spaulding Rehabilitation Center, 1575 Cambridge St., Cambridge, MA – Chapel Room. Please ask for directions to the room at the front desk.
PARKING: There is limited visitor parking at the center and metered parking on Cambridge St.
2/1/14: Dr. Jeanne Hubbach – Yeast and Bacterial Imbalances in Relation to Lyme and Chronic Infections
3/1/14: Richard Longland – The Arthroplasty Patient Foundation – Why Am I Still Sick: The Silent Role of Biofilms - 50 Minute slide presentation with Q&A
4/5/14: Dr. Katherine Lantsman – Co-infections – More details to be posted soon.
I will add to this list as more speakers are confirmed.
Please email me with any questions!
It was so nice to have Angeli Vanlaanen, a professional skier from Utah, in Boston to show her documentary about her recovery from Lyme disease. She is by far one of the sweetest people I have ever met and we were so happy to be able to host her for a night at our house due to an issue with her hotel reservation. Before she arrived, I told Rylan that we were having someone very special staying with us and we sat and watched videos of her skiing off cliffs and mastering “cool tricks” on the half pipe. He was SO impressed and waited by the window until she arrived. As soon as she walked in, Rylan was all over her. He showed her to her room and gave her the picture he drew of her skiing and then the two of them settled on two bar stools in the kitchen where Rylan asked Angeli to draw three things for him. He drew three lines and said, I want you to draw what you do for work, a picture of your house, A N D…..how much money you make! Ha! I tried to explain to him that it wasn’t polite to ask people how much money they made and he replied, why??? I have LOTS of money in my piggy bank! Do you think she has more than me because I have A LOT of money! Angeli was so wonderful with the kids and it was really nice to have someone to talk to that was as sick as I once was and was doing SO well and looked so incredibly healthy. I mean, the girl is now training for the Olympics! That’s incredible!
We had a small gathering at the Spaulding Rehabilitation Hospital in Charlestown where we showed her documentary, LymeLight – The Story of Professional Freeskier Angeli VanLaanen Living With Lyme Disease. If you haven’t seen it already, please click on the link above. It’s a very short, 30 minute documentary. I think it’s amazing that she has chosen to spread awareness about this disease through her documentary and several interviews. You can read more about her on the Team USA website HERE.
Pictures from the event:
I’m so happy where things are going with our group. There are so many great things happening that I will share with all of you soon and we are hoping to have Angeli come back next year to help with our efforts!
Dr. Shea, Neuropsychologist and president of ILADS recently spoke to our support group about Neuropsychology and Lyme Disease. A must see! Here is the video from his presentation:
State Representative Theodore Speliotis will be sponsoring a Lyme Disease Awareness Day at the State House in Boston on Monday, April 29th at 11:00am – 3:00pm. S.L.A.M, the Lyme Awareness of Cape Cod and the Boston Lyme Group will be hosting.
This is an educational event for politicians, doctors and patients. More details will follow.
In the meantime, I am creating a Wall of Hope that will be publicly displayed during the event. If you live in Massachusetts and would like to participate, please email your picture with name, town and county that you live in to firstname.lastname@example.org.
We are happy to have Dr. Leo Shea speak to our group this Saturday, March 2nd at 1:00pm – 2:00pm. Our support group will meet afterwards from 2:00 – 3:00pm.
Dr. Leo Shea is currently the president of ILADS (International Lyme and Associated Disease Society). His expertise is in neuropsychology which includes traumatic brain injury, tick-borne, autoimmune and chronic disease and stroke. He will be talking about “Understanding the Neuropsychological Consequences of Lyme Disease”.
LOCATION: Cambridge Spaulding Rehab Center – 1575 Cambridge St., Cambridge, MA – Chapel Conference Room, 3rd Floor
There is visitor parking located by the side entrance.
I hope to see some of you there!
The Boston Lyme Group is very pleased to announce that our February speaker will be Dr. Kenneth Liegner from Pawling, NY. The event details are as follows:
Spaulding Hospital Cambridge
Chapel Hill Conference Room
February 2, 2013 at 1pm
We will be sending out a flyer soon, but we thought to at least get a SAVE THE DATE email sent first.
Brandi and James