MA Lyme Association – Upcoming Speakers

Hi folks,

We just wanted to inform you about a speaking engagement on 4/27 by Dr. Richard Horowitz in Cambridge that is free and open to the public.

The details are as follows:

Dr. Richard Horowitz
Lecture and Patient Support

DATE: Sunday, April 27th : 1:00pm – 4:00pm.

LOCATION: Cambridge Spaulding Rehabilitation Center – 1575 Cambridge St., Cambridge, MA – Chapel Conference Room

PARKING: Please note that since visitor parking is limited at the center, the alternative would be metered parking on Cambridge Street, so please have a few extra quarters in tow just in case.

PUBLIC TRANSPORTATION: The Rehabilitation Center is a 10 minute walk from the Harvard Square Red Line T station.

Event is free
Donations accepted
No RSVP required

Healthy wishes,
Your Massachusetts Lyme Association (MLA)

 

MA Lyme Association – Meeting Saturday, March 1st

DATE: Saturday,  February 1st : 1:00pm - 3:00pm. Future meetings will take place the first Saturday of every month at the same time and location.
LOCATION: Cambridge Spaulding Rehabilitation Center - 1575 Cambridge St., Cambridge, MA - Chapel Conference Room (Once inside the main doors, simply ask security for further directions to “Neuromuscular Infections Treatment & Rehab Interest Group,”)
PARKING: Please note that since visitor parking is limited at the center, the alternative would be metered parking on Cambridge Street, so please have a few extra quarters in tow just in case.
PUBLIC TRANSPORTATION: The Rehabilitation Center is a 10 minute walk from the Harvard Square Red Line T station.
Upcoming events
Saturday, March 1st: Richard Longland will 1) present a chapter of his interview with Dr. Alan MacDonald titled “Why Am I Still Sick?” followed by a Q&A session,  2) provide a 50 minute slide  presentation on biofilms, and, time permitting, 3) show a clip from Dr. Eva Sapi showing borrelia in biofilm.
Saturday, April 5th: Dr. Katherine Lantsman
If you have any questions at all, please do not hesitate to email Brandi: cosmomwithlyme@gmail.com or myself gilberjp1@yahoo.com. And, please, feel free to pass this event information along to anyone you feel may be interested.
Healthy wishes,
Your Massachusetts Lyme Association (MLA)
Regards,
James Gilbert

Boston Lyme Support Group

The Boston Lyme Support Group will be meeting the first Saturday of every month, except for July.  Please email me at cosmomomwithlyme@gmail.com if you would like to be added to our email list.  Here are the details:

DATES:  First Saturday of every month
TIME:  1:00pm – 3:00pm (First hour with speaker, second hour for support)
LOCATION:  Cambridge Spaulding Rehabilitation Center, 1575 Cambridge St., Cambridge, MA – Chapel Room.  Please ask for directions to the room at the front desk.
PARKING:  There is limited visitor parking at the center and metered parking on Cambridge St.

SPEAKERS:

2/1/14:  Dr. Jeanne Hubbach – Yeast and Bacterial Imbalances in Relation to Lyme and Chronic Infections

3/1/14:  Richard Longland – The Arthroplasty Patient Foundation – Why Am I Still Sick:  The Silent Role of Biofilms - 50 Minute slide presentation with Q&A

4/5/14:  Dr. Katherine Lantsman – Co-infections – More details to be posted soon.

I will add to this list as more speakers are confirmed.

Please email me with any questions!

The Boston Lyme Group – Upcoming Speakers – Changes

We will no longer be meeting at the Spaulding Rehab Center in Cambridge since they are moving.  Please make note of the dates, times and locations as they have recently changed.  I will post more information about our support group meetings as soon as we hash all that out!  Feel free to email me at cosmomomwithlyme@gmail.com if you should have any questions!
To Be Determined – RESCHEDULED:
John Branda MD “Update on Diagnostic Testing for Lyme Borreliosis”
LOCATION:  MGH O’Keefe Auditorium
Thursday, August 29th – 12:00pm:
Eva Sapi PhD ” “Borrelia: Morphology, Antibiotic Sensitivity and Clinical Implications for Lyme disease”
LOCATION:  MGH O’Keefe Auditorium
To Be Determined – RESCHEDULED:
Richard Horowitz MD “Lyme Disease and Multi-Systemic Infectious Disease Syndrome (MSIDS): A New Paradigm for the Diagnosis and Treatment of Chronic Illness.”
LOCATION:  MGH O’Keefe Auditorium
These talks will be providing CME credits – we are pending approval within the next week. CMEs will be free.  Attendance for the community is free.  We appreciate your help in this effort. Thank you.
Neuromuscular Infection Group / Boston Lyme Group

LymeLight with Angeli Vanlaanen

It was so nice to have Angeli Vanlaanen, a professional skier from Utah, in Boston to show her documentary about her recovery from Lyme disease.  She is by far one of the sweetest people I have ever met and we were so happy to be able to host her for a night at our house due to an issue with her hotel reservation.  Before she arrived, I told Rylan that we were having someone very special staying with us and we sat and watched videos of her skiing off cliffs and mastering “cool tricks” on the half pipe.  He was SO impressed and waited by the window until she arrived.  As soon as she walked in, Rylan was all over her.  He showed her to her room and gave her the picture he drew of her skiing and then the two of them settled on two bar stools in the kitchen where Rylan asked Angeli to draw three things for him.  He drew three lines and said, I want you to draw what you do for work, a picture of your house, A N D…..how much money you make!  Ha!  I tried to explain to him that it wasn’t polite to ask people how much money they made and he replied, why???  I have LOTS of money in my piggy bank!  Do you think she has more than me because I have A LOT of money!  Angeli was so wonderful with the kids and it was really nice to have someone to talk to that was as sick as I once was and was doing SO well and looked so incredibly healthy.  I mean, the girl is now training for the Olympics!  That’s incredible!

We had a small gathering at the Spaulding Rehabilitation Hospital in Charlestown where we showed her documentary, LymeLight – The Story of Professional Freeskier Angeli VanLaanen Living With Lyme Disease.  If you haven’t seen it already, please click on the link above.  It’s a very short, 30 minute documentary.  I think it’s amazing that she has chosen to spread awareness about this disease through her documentary and several interviews.  You can read more about her on the Team USA website HERE.

Pictures from the event:

Nevena Zubcevik, DO, Angeli Vanlaanen, and David Crandell, MD (He works with all of the amputee patients from the Boston Marathon Bombing and he will be helping us with our upcoming fundraising efforts)

Nevena Zubcevik, DO, Angeli Vanlaanen, and David Crandell, MD (He works with all of the amputee patients from the Boston Marathon Bombing and he will be helping us with our upcoming fundraising efforts)

The Boston Lyme Group - David, Nev, Angeli, Me, James - Great crew!

The Boston Lyme Group – David, Nev, Angeli, Me, James – Great crew!

Nev, Angeli, Steven Patrick, VP of Development at Spaulding Rehab Hospital and me.

Nev, Angeli, Steven Patrick, VP of Development at Spaulding Rehab Hospital and me.

I’m so happy where things are going with our group.  There are so many great things happening that I will share with all of you soon and we are hoping to have Angeli come back next year to help with our efforts!

The Boston Lyme Group – Upcoming Speakers

We will no longer be meeting at the Spaulding Rehab Center in Cambridge since they are moving.  Please make note of the dates, times and locations as they have recently changed.  I will post more information about our support group meetings as soon as we hash all that out!  Feel free to email me at cosmomomwithlyme@gmail.com if you should have any questions!
Wednesday, June 5th – 5:00pm:
Professional Skiier, Angeli Vanlaanen Movie Premiere “LymeLight” with Q&A with Angeli
LOCATION:  Spaulding Rehabilitation Hospital in Charlestown
To Be Determined – RESCHEDULED:
John Branda MD “Update on Diagnostic Testing for Lyme Borreliosis”
LOCATION:  MGH O’Keefe Auditorium
Thursday, August 29th – 12:00pm:
Eva Sapi PhD ” “Borrelia: Morphology, Antibiotic Sensitivity and Clinical Implications for Lyme disease”
LOCATION:  MGH O’Keefe Auditorium
To Be Determined – RESCHEDULED:
Richard Horowitz MD “Lyme Disease and Multi-Systemic Infectious Disease Syndrome (MSIDS): A New Paradigm for the Diagnosis and Treatment of Chronic Illness.”
LOCATION:  MGH O’Keefe Auditorium
These talks will be providing CME credits – we are pending approval within the next week. CMEs will be free.  Attendance for the community is free.  We appreciate your help in this effort. Thank you.
Neuromuscular Infection Group / Boston Lyme Group

Wall of Hope

State Representative Theodore Speliotis will be sponsoring a Lyme Disease Awareness Day at the State House in Boston on Monday, April 29th at 11:00am – 3:00pm.  S.L.A.M, the Lyme Awareness of Cape Cod and the Boston Lyme Group will be hosting.

This is an educational event for politicians, doctors and patients.  More details will follow.

In the meantime, I am creating a Wall of Hope that will be publicly displayed during the event.  If you live in Massachusetts and would like to participate, please email your picture with name, town and county that you live in to cosmomomwithlyme@gmail.com.

Dr. Leo Shea – President of ILADS Speaking in Boston

Hi everyone!

We are happy to have Dr. Leo Shea speak to our group this Saturday, March 2nd at 1:00pm – 2:00pm.  Our support group will meet afterwards from 2:00 – 3:00pm.

Dr. Leo Shea is currently the president of ILADS (International Lyme and Associated Disease Society).  His expertise is in neuropsychology which includes traumatic brain injury, tick-borne, autoimmune and chronic disease and stroke.  He will be talking about “Understanding the Neuropsychological Consequences of Lyme Disease”.

LOCATION:  Cambridge Spaulding Rehab Center – 1575 Cambridge St., Cambridge, MA – Chapel Conference Room, 3rd Floor

There is visitor parking located by the side entrance.

I hope to see some of you there!

Dr. Kenneth Liegner speaking this Saturday – 2/2/13

Dear all,
This is just to remind those of you interested that the Boston Lyme Group, a.k.a. for purposes of the meeting “Neuromuscular Infections Treatment & Rehab Interest Group,” will have its February meeting as follows:
DATE: Saturday, February 2nd : 1:00pm – 3:00pm. The first hour and a half will offer Dr. Kenneth Liegner from Pawling, NY, with a half hour or so left for support at the end. This meeting will be geared more toward physicians but all, of course, are welcome. Future meetings will take place the first Saturday of every month at the same time and location.
LOCATION: Cambridge Spaulding Rehabilitation Center - 1575 Cambridge St., Cambridge, MA - Chapel Conference Room (Once inside the main doors, simply ask security for further directions to “Neuromuscular Infections Treatment & Rehab Interest Group,”)
PARKING: Please note that since visitor parking is limited at the center, the alternative would be metered parking on Cambridge Street, so please have a few extra quarters in tow just in case.
PUBLIC TRANSPORTATION: The Rehabilitation Center is a 10 minute walk from the Harvard Square Red Line T station.
If you have any questions at all, please do not hesitate to email me: cosmomwithlyme@gmail.com or James gilberjp1@yahoo.com.
Healthy wishes,
Brandi & James