Lyme Symposium in Boston – Saturday, November 9th

Dear all,
It is with great pleasure to announce that on Saturday, November 9th, our group, the Neuromuscular Infection Treatment & Rehabilitation Interest Group, will be hosting an event in the Thier Auditorium of the Massachusetts General Hospital (MGH) titled:
Lyme Disease and Tick-Borne Illness Community Conference.
The line-up of speakers include:
8am-9am:  Mark Eshoo, PhD, Abbot Technologies “Direct Detection of Tick-borne pathogens”
9am-10am:   Richard Horowitz, MD “Lyme Disease and Multi-Systemic Infectious Disease Syndrome (MSIDS): A new paradigm for the diagnosis and treatment of chronic illness.” 
10am-11am:   Katherine Lantsman, MD “Prevention Strategies for Tick Borne Illness”
11am-12pm:   Leo Shea, PhD “Neuropsychology of Lyme Disease”
 
For directions, please refer to MGH’s website: http://www.massgeneral.org/visit/directions/
RSVP is required for this event, so please contact James Gilbert, via email: gilberjp1@yahoo.com to confirm the number in your party.
To help us offset some of the conference costs, a donation of $25 per attendee is suggested, which can be made at: https://giving.spauldingnetwork.org/lyme.
Until then, if you have any questions, please do not hesitate to let me know. And, please, feel free to pass this event information along to anyone you feel may be interested.
Looking forward to seeing any and all!
 
Healthy wishes,
Your Boston Group

 

Dr. Eva Sapi to speak in Boston about Lyme Disease

This post is just to remind you all that on Thursday, 8/29 from 7-9pm our group, the Neuromuscular Infections Treatment & Rehab Interest Group, will be hosting Dr. Eva Sapi who will be giving a lecture titled, “BORRELIA: MORPHOLOGY, ANTIBIOTIC SENSITIVITY AND CLINICAL IMPLICATIONS FOR LYME DISEASE.”

Dr. Sapi is an Associate Professor and University Research Scholar at the University of New Haven in Connecticut. She teaches graduate biology courses and carries out Lyme disease research.

We are trying to get a rough head count for the event, so if you are planning on coming, please let us know.

LOCATION: Cambridge Spaulding Rehabilitation Center – 1575 Cambridge St., Cambridge, MA – Chapel Conference Room (Once inside the main doors, simply ask security for further directions to “Neuromuscular Infections Treatment & Rehab Interest Group,”)

PARKING: Please note that since visitor parking is limited at the center, the alternative would be metered parking on Cambridge Street, so please have a few extra quarters in tow just in case.

PUBLIC TRANSPORTATION: The Rehabilitation Center is a 10 minute walk from the Harvard Square Red Line T station.

This event is free and open to all.

Hope to see you there!

Healthy wishes,
Brandi, David, Phuli & James

Wall of Hope

State Representative Theodore Speliotis will be sponsoring a Lyme Disease Awareness Day at the State House in Boston on Monday, April 29th at 11:00am – 3:00pm.  S.L.A.M, the Lyme Awareness of Cape Cod and the Boston Lyme Group will be hosting.

This is an educational event for politicians, doctors and patients.  More details will follow.

In the meantime, I am creating a Wall of Hope that will be publicly displayed during the event.  If you live in Massachusetts and would like to participate, please email your picture with name, town and county that you live in to cosmomomwithlyme@gmail.com.

Lyme Author Being Considered for Pulitzer Prize – Please Help

The following email was sent to me by Microbiologist and Lyme Advocate, Holly Ahern.  Please help us by submitting a letter of support for Mary Beth Pfeiffer!

Over the past several months, Mary Beth Pfeiffer, a journalist with the Poughkeepsie Journal in downstate NY, has written a series of articles that essentially blows the lid off the barrel of misinformation about Lyme disease coming from various public health agencies. Her most recent piece reveals the dangers of Babesia (one of the Lyme coinfections) invading the blood supply. Her series can be accessed via the link below:

http://www.poughkeepsiejournal.com/section/lyme?template=odytheme&theme=lyme

Mary Beth’s piece is being considered for a PULITZER PRIZE! If the series were to win the Pulitzer… well, imagine the press coverage for that! I contacted the Pulitzer Prize office (which is at Columbia University, interestingly) and asked how to submit a letter of support for the piece. They inform me that the author will upload the entire submission (including letters of support and any emails sent in response to the series) and then the judges evaluate everything, electronically.

So, what I’m asking you to do is send either a letter of support (as an attachment) or even just an email in support of the series to Mary Beth Pfeiffer. Her email is:

marybethpf@aol.com

The category she’s submitting to is “Explanatory Journalism.” So in your email, you might mention what a great job Pfeiffer did in “explaining” the concepts and controversies; that although the concept of “chronic” disease caused by a tick borne infection is controversial, you thought that Pfeiffer did an outstanding job explaining the past and present state of Lyme disease medicine in the US; that she was able to chip away at long held misconceptions using solid and credible sources; the significance of the series in confronting a complex medical problem; that her piece highlights the plight of millions of people in the United States who currently can’t get diagnosed or treated for Lyme disease and therefore suffer needlessly; that the series may bring much needed awareness and attention to the Lyme disease controversy…

And, as I asked you last time, please please forward this on to 10,000 of your closest friends!

Important Note: the deadline is January 15th.

Thank you all so much for for past and present help!

Dr. Kenneth Liegner Speaking to Boston Lyme Group – Saturday, 2/2/13

The Boston Lyme Group is very pleased to announce that our February speaker will be Dr. Kenneth Liegner from Pawling, NY. The event details are as follows:

Spaulding Hospital Cambridge
Chapel Hill Conference Room
February 2, 2013 at 1pm

We will be sending out a flyer soon, but we thought to at least get a SAVE THE DATE email sent first.

Healthy wishes,
Brandi and James

ILADS Live Streaming Schedule

If you were unable to attend the conference, here is the schedule of the live streaming so that you are able to listen to all of the speakers:

Americas – December 1 – 2

Europe – December 8-9

Australia – December 15-16

Click on the ILADS LIVE STREAM link for more information.